Friday 10 June 2011

Mia's Helmet

A huge thank you and well done to everyone that has helped us over the last two weeks to raise the money we need for Mia,
We have raised just over £500 to date and this has been used as a deposit for Mia's helmet so that her treatment can begin.

We have our Mad Hatters Parade tomorrow and will be meeting at the Lake Road East entrance to the lake at 13:30 and setting off on the walk from 14:00. 

Weather permitting we plan to have a picnic after the walk on the grass of the play ground area... All welcome to join..Bring your own food!

There was a small article on Mia's sponsored walk in the South Wales Echo today ( page 4 )  and more will follow in tomorrows paper... 


**************** ONLINE AUCTION***************
 **************** COMING SOON *****************

Please watch this space some great things are going to be up for grabs ........                      




Friday 3 June 2011

Mad Hatters Parade and picnic Saturday 11th June

What a wonderful day it is outside we hope that you are all making the most of the great weather and doing something fun, lets hope that the weather next weekend is as good as this

Mad Hatters Parade and Picnic
 We will meet at Roath Park at the Lake Road East entrance, (ice cream van and children's park)
from 13:30, We will aim to set off at 14:00 and walk around the lake.

We want this event to be about family and fun so, Mums and Dads, Nana's and Papa's Aunt's and Uncle's
get the silliest hats you can find and walk with no shame around the lake, its to raise awareness and money for a wonderful little girl.
We want as many people as we can to join us and take part, you can get in contact with us via vickylemonheigh@yahoo.com or on facebook  http://www.facebook.com/pages/Help-Mia-get-her-helmet/152425944828072
for a sponsor form.

It will be a leisurely walk around the lake as we will have many children, Some are even Running around the lake  4 times!
We will then end the walk with a picnic on the grass area in the children's playground so we can all sit and chat and have cuddles with Mia.
Invite friends and family we want you all to join us, Dogs too, make sure you bring lots of yummy food with you and plenty of fluids and suncream for the walk.

Don't forget we still have our Online Auction that will be here in the next few weeks so save some pennies we don't want you to miss out on some of the Amazing items up for grabs....

In the meantime Thank you once again for your continued support,


http://www.justgiving.com/miabrookecrowley

Wednesday 1 June 2011

Thanks

Mia would like to thank everyone that has kindly been spreading the word and raising awareness on other Social forums like Facebook and Twitter, its working we have had a huge surge in page views since yesterday and are really trying to push for people to help in anyway they can.

Something as simple as posting this link on facebook or twitter can reach a huge audience in moments.

UPCOMING EVENTS.

We have our Funny hat sponsored walk on Saturday 11th June  at Roath park  starting at 13:30  http://www.facebook.com/event.php?eid=186928788026396

We also have an Online Auction that we are arranging with the help of Charlotte Bram and Ed Pereira.

We are looking for donations for this event...If you run a business that feels they can have something to contribute or if you have a skill that you would not mind giving out to the highest bidder, for example Handy man/woman decorating, Gardening. we would love for you to get in touch via miabrooke17@gmail.com or vickylemonheigh@yahoo.com

We promise that we will have some amazing items for you to all bid for so WATCH THIS SPACE.....

Don't Forget you can also make a donation online at Mia's Just giving page
http://www.justgiving.com/miabrookecrowley

Thank you all so much,
Love on behalf of  Mia xx

Tuesday 31 May 2011

Mia's Story....

Mia is a very special and very much loved and treasured Daughter to Sam and Mike,
No one can appreciate how special she is to them personally,

In November 2008 Samantha and Micheal were very excited at the pending arrival of their first child, But sadly Kai Patrick Lewis Crowley was too special for this world and grew his angel wings on November 8th 2008.
Samantha and Mike were very happy but also very frightened when they soon found out that Mia was on her way.
Mia Arrived safely on December 1st 2009 and Gave both Mum and Dad a reason to smile again.

Mia enjoyed her first Christmas and her first snowfall with all her family around her and as her little character developed we all became so proud of her daily amazing achievements,





May 2nd 2010 was Mia's christening day and Mum and Dad had just arrived at Great Nana's house to get Mia dressed ready to go to the church, Mia took ill and needed urgent medical attention, After the ambulance arrived and took her to the University Hospital of Wales Mia was under observation and was let out for the christening to take place but had to return to hospital immediately after the ceremony had finished,



The hospital could not conclude what was wrong and put it down to fibril convulsions...Over the course of the next two months to follow Mia was in and out of hospital almost every other week, Her seizures became stronger and more frequent, Mia was 5 months old when she was diagnosed with Epilepsy, her seizures would vary from Tonic Clonic to Petit Mal some days Mia would have over 30 seizures after many scans and E.E.G's Mia was also diagnosed with 3 types of epilepsy and West syndrome,

She is on medication to keep it under control and is doing well,

Mia has come along way in her little life and makes us prouder with every cheeky little smile she gives us.
All of the things that she has experienced have had both a physical and mental affect on Mia's development and as a result Mia  has delayed learning skills,
Mia was only able to sit up and support herself at around 13 months and has learnt to crawl at around 16 months,
She now loves to stand and walk with you while you hold her hands and I actually witnessed her standing up alone just the other day in the kitchen, (Very proud moment )

Mia was recently Diagnosed with Brachycephaly ( Flat head syndrome) and is in need of a special helmet to help reshape her head, The Nhs deem this as cosmetic under our Health care but we have heard that it is covered by the Nhs in other areas an Nhs postcode lottery that we don't fall into.

The Cake sale Saturday 28th May 2011


This event was a great success and we raised £120 in total from the combination of raffle tickets (£50) and cakes (£70)

Mia was overwhelmed by the support of everyone who came to the stand either to make a purchase or to just pop in and say Hi to give us some support. It touched all our hearts that you came.

We had so much fun making the cakes and decorating them.. Some people enjoyed the cake mix more than the cakes... But who doesn't (lol)

A huge huge THANK YOU to all that helped us in the preparations.

The Bakers:-

Samantha Price (Mummy) Suzanne Davies (Nan) Yvonne Lemon-Heigh (Great Aunty Bon) Katherine Martinson (Cousin) Tina Dean, Debbie, Lucy,Tim, Dez, Ann, Sarah, And  Kathy & Mikey Hinton.




We also received some very generous donations from Memory Lane Bakery and Mandy Roberts

And to Danielle Price and Elise for decorating the cakes...Great work to everyone that made it the success that it was,

Thursday 26 May 2011

Join in the fun

This weekend we are holding a cake stall at our local church hall

All Saints Church 
Gabalfa Road
Llandaff North
11:00-1400


Preparations are under way and we have lots of people that have donned their oven mitts and have been baking since early this morning... Pictures and names to follow ....